Data

How This Library Is Organized

As the number of projects and releases grows, this section will be organized along a few simple axes:

• By project or program (for example, PAEON, caregiver surveys, facility-level studies)
• By topic (for example, chronic disease, screening, access, caregiver burden, or future domains)
• By year or time window (single years, multi-year ranges, or Baseline vs. Follow-Up)
• By format (Summary Tables, Geospatial Layers, Maps, and Graphics)

The goal is to make it possible for someone who was not involved in the original work to find the right dataset, understand what it represents, and use it safely.

Project Index (In Development)

As public releases become available, this section will list datasets and graphics grouped by project, with links to download files and read brief documentation.

• PAEON — Population-Adjusted Epidemiology Outcomes Network, providing County-Level Summaries and Risk Surfaces derived from harmonized population, survey, and surveillance data.
• Caregiver & facility-level projects — aggregated results from Alzheimer’s Disease and Related Dementias (ADRD) Caregiver Surveys and similar instruments deployed in facilities and programs.
• Other applied projects — future work in additional domains (for example, environmental or agricultural data) that uses the same structured approach to integration and modeling.

For now, these entries are placeholders; as releases are finalized, each project will gain its own subsection with specific files, years, and notes.

PAEON-Derived Data (Planned Structure)

For PAEON, the Data Library is expected to host stable, reusable Summaries rather than every intermediate modeling artifact. A typical release might include:

• County-Level Summary Tables for selected indicators (for example, prevalence, rates, or screening coverage)
• Border-Region Extracts for specific corridors or comparison groups
• Modeled Burden and Risk Summaries for selected years or year ranges
• Basic Crosswalks and Code Lists to support downstream analyses

When the first PAEON releases are ready, they will appear here with download links and short Methods Notes that explain sources, inclusion criteria, and modeling choices at a high level.

Caregiver & Facility-Level Outputs

For Caregiver Surveys and facility-level projects, the focus will be on de-identified, aggregated results that illustrate patterns and trends without exposing individual records.

• Summary Tables describing caregiver characteristics and burden metrics
• Facility-Level or Regional Aggregates where sample sizes support safe reporting
• Selected Graphs and Maps used in partner reports, made available as image files

Facility-specific datasets and internal reports will remain under their respective agreements and will not be posted in raw form to this public library.

Formats & Documentation

Regardless of project, each public data release will come with enough context to be interpretable on its own.

• Machine-readable files (for example, CSV or similar Tabular Formats)
• Short Data Dictionaries describing variables, units, and key recodes
• Methods Notes summarizing data sources and high-level modeling approaches
• Version Labels and Release Dates so users can track updates over time

Access & Custom Work

The public data listed here is intended for broad use in planning, research, and communication. If you are interested in custom Extracts, Project-Specific Analyses, or additional Modeling built on these datasets, Acropolis Analytics Research Institute can often support that work as a separate engagement.

To discuss access, collaboration, or planned future releases, please reach out through the contact form with a brief description of your Data Needs and how you plan to use the results.